Do people believe I'm blind in one eye? No one has ever told
me that they can tell I'm blind in one eye, because there is no
physical way to tell when looking at me. I can physically see that I am
blind in that eye, if I cover my right eye I can clearly determine
that I have no vision in my left eye. No one has ever asked me to prove
that I am blind in one eye, so why do you ask me to prove that I have
anxiety problems? Just because you cannot physically see it does not
mean it isn't there. People constantly question it and whisper, even
though both my anxiety problems and eye disease are well documented in
patient history files(I know everyday people can't see my records,
besides the point). It seems people can easily take my word that I am
blind in one eye with no physical evidence, but for some reason when I
mention I have anxiety problems they suddenly need strong evidence to
support that. Break the fucking stigma. I have PTSD(age 19),
Agoraphobia, Emetophobia(6 years old), GAD(childhood onward), Social
phobia, Panic disorder, OCD(5 years old*). I've also been blind in one
eye(age 15) due to Multifocal Chorioretinitis with possible Retinal
Vasculitis that started at age 13. In fact, my prognosis at 14 included
a seeing eye dog and a cane because I was supposed to be 100% blind by
18 years old.
(This was a post on facebook, below is a continuation)
So yeah, I know what it
feels like to go nearly blind, I've been there. I have this disease in
BOTH eyes. I almost went blind in my right eye, then it switched eyes
and attacked my left eye too fast for my specialist to save it. At the
time there was no surgery to bring my left eye back, the scar tissue
reached the nerves, which deemed it as permanent damage. They had
experimental surgeries but for one reason or another I couldn't
participate. They have a surgery now, if the disease should ever attack
that rapidly again. As for my blind eye(left).... There is no surgery.
It requires something along the lines of an optic nerve transplant,
which hasn't been invented yet(Luckily science is making advances)....
I
lived my teen years hopeless, taking dangerous medications to try and
save my eyesight, injections into my eye(not the eyeball, right below
it) to make the treatment more potent, wondering how this even
happened... And when I beat that prognosis I knew there was hope.
Getting pregnant saved my eyesight, soon after I got pregnant my disease
went into remission. My body had given me a second chance to do things
differently. My disease flares up during times of extreme stress, in
fact I have gone temporarily blind due to stress.
So I
have an adventurous attitude about things, I like to read things, I like
to put makeup on, I like to get dressed. I like to stare at things. I
like to look at the wonders of the world. I like to feel pretty.
Because I know that one day I could easily be stripped of my vision, if my body decides its time. It could literally be any day.
Imagine how that would feel for you to be in that situation.
I've
lead most aspects of my life with the attitude that I could go blind
tomorrow, so I better do things I enjoy doing today. So I put on that
fucking makeup, do my hair, and dress myself until I'm satisfied with
it.
This ties in with anxiety because I have been
limited in most things due to the anxiety and they are both invisible
illnesses to YOU.
As for my eyes, you can't see: The
lines, dots, flashes and all kinds of tracers I see in my visual field
every day. Light being extremely brighter, the tunnel vision, the loss
of depth perception and having to guess in almost every daily activity
about distances, the mild pain that leads to migraines, the blindness in
my left eye, the 20/150 vision in my GOOD eye.
And
my anxiety, you can't see/feel: The thought processes that cluster, the
neurons firing in my brain alerting my body of imagined danger, the
body working up into panic, the imagined nausea, the obsessive thoughts
that nag me endlessly, and so much more that I could list if you really
want me to.
All you see with my eyes is: Nothing.
All
you see with my anxiety is: Next to nothing. You might see a panic
attack(I usually run away and hide to have my panic attacks), or me
suddenly having to leave with little to no explanation.
You assume: I have good vision, and I'm a rude bitch.
I can assure you, neither assumption is true.
You
can see more of my anxiety than you can regarding my vision. Yet people
easily believe I am blind in one eye with little to no explanation,
however with anxiety, they become skeptical.
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I have read all of your blog and started to write a bunch of details why I enjoyed it so much as you shined so much light to some unanswered questions and details I had from your own perception of what was going on around you. BUT I just deleted everything I wrote because I might bore you as my story with my own daughter isn't nearly as tragic as yours.
ReplyDeleteBUT I want to say to you that you really should keep this blog up because for people like me ....you've helped me a great deal to better understand anxiety and depression and the feeling of hopelessness when no one is listening and how we need to listen more to our kids and not chalk it up to just acting out or being spoiled.
SO thank you for sharing your life with us as I am sure it wasn't easy.
I think you're a wonderful brave young woman.
I wish you love and much inner peace.
You would never bore me, trust me! I am a talker. I apologize for taking so long to respond, its been a rough time... This means so much to me, I am so glad that you have had questions answered by reading this. Childhood is the pivotal time in a humans life where we are being shaped for adulthood, developing, forming. Intervention during that time is very critical, and sadly in past generations it has been ignored. I hope it is a trend that soon dies out.
ReplyDeleteI wish you love as well, I hope you are doing well <3